God is good. He is an ever present help in times of trouble.
Update: Daddy posted day 6 a little late so there’s two in one day. (side note apparently dave and I both don’t spell check or grammar check the best…)
Today we’re getting/have gotten the third dose of one of the chemo meds and a new med. Grace hasn’t been feeling her best today. She’s fussy and having some rough emotions. All this to say she’s still amazing. She will laugh or smile still in the middle of this. She’s got her ideas about what she does and doesn’t like. She stealthily like a ninja pulled her NJ tube yesterday after much torture getting the bloody thing in. The effect of that, lots of bartering for her to eat so she doesn’t have to have the “tube“ again. The tube is hanging close by as a reminder for her to eat. I had tears in my eyes tonight when she ate half a bag of potato chips...the other half I ate so I didn’t have to have a tube…oh Gracie I’m far from that girl friend.
She holds onto a prayer journal that she calls the Bible. At one point she said “God’s word is medicine”. So Zephaniah 3:17 is being prayed over her as her medicine tonight.
Ending thought: what if I craved God’s word more than anything. Such an awesome lesson from my sweet mama bear who’s in the fight of her life.
Zephaniah 3:17
